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ICPR

Patients & caregivers can directly upload their clinical records into their secure digital profile

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Benefits for Patients & Caregivers

Benefits for Patients & Caregivers
  • Store your medical records in one, easily accessible location

  • Share your health records with one simple link

    • Get second opinions

    • Access a personalized clinical trial report

    • Collaborate with your medical team

    • Coordinate with your caregivers

Accelerate Research
  • Engage in research by allowing your records to be included in the ICPR

  • Advance understanding of cholangiocarcinoma

  • Accelerate discovery of new treatment options for patients

Patient registries are critical to developing new medical treatments. By sharing your or your loved one's de-identified medical data, you may be able to help researchers:
  • Develop new targeted therapies

  • Design better clinical trials

  • Understand how the disease changes over time

  • Use data (instead of actual patients) in clinical trials

The International Cholangiocarcinoma Patient Registry is powered by Invitae Ciitizen

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Le Collectif Canadien pour le cholangiocarcinome (C3) est financé par une subvention d'équipe révolutionnaire de la Société Canadienne du cancer en partenariat avec les Instituts de recherche en santé du Canada. Les fonds de la subvention pour le C3 sont gérés par l'Institut de recherche de l'Hôpital d'Ottawa, qui sert d'institut principal pour toutes les opérations collaboratives.

© 2025 www.cholangio.ca. All rights reserved.

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