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ICPR

Patients & caregivers can directly upload their clinical records into their secure digital profile

Benefits for Patients & Caregivers

Benefits for Patients & Caregivers
  • Store your medical records in one, easily accessible location

  • Share your health records with one simple link

    • Get second opinions

    • Access a personalized clinical trial report

    • Collaborate with your medical team

    • Coordinate with your caregivers

Accelerate Research
  • Engage in research by allowing your records to be included in the ICPR

  • Advance understanding of cholangiocarcinoma

  • Accelerate discovery of new treatment options for patients

Patient registries are critical to developing new medical treatments. By sharing your or your loved one's de-identified medical data, you may be able to help researchers:
  • Develop new targeted therapies

  • Design better clinical trials

  • Understand how the disease changes over time

  • Use data (instead of actual patients) in clinical trials

The International Cholangiocarcinoma Patient Registry is powered by Invitae Ciitizen

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