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CADTH RDR RFP Supplemental Material

References

1.     Public Health Agency of Canada, Statistics Canada, Canadian Cancer Society & provincial/territorial cancer registries. Release notice - Canadian cancer statistics 2019. Health Promot. Chronic Dis. Prev. Can. 39, 255 (2019).

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5.     Shroff RT, Ilyas SI, Javle MM, Valle JW, Azad NS, Borad MJ, Nottke A, Hu J, Stirnadel-Farrant HA, Valerio SJ, Maithel SK. Patient characteristics, treatment patterns, and outcomes in patients with cholangiocarcinoma in the United States. (04-2024).

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10.   Nottke, A. et al. Validation and clinical discovery demonstration of breast cancer data from a real-world data extraction platform. JAMIA Open 7, (2024).

11.   Canadian Cancer Society / Société canadienne du cancer. Building a national network for people with biliary tract cancers. Canadian Cancer Society https://cancer.ca/en/research/for-researchers/funding-results/breakthrough-team-grants/building-a-national-network-for-people-with-biliary-tract-cancers.

12.   The Alliance. https://www.globalccaalliance.com/the-alliance.

13.   Cholangiocarcinoma Foundation – To find a cure and improve the quality of life for those affected by cholangiocarcinoma (bile duct cancer). https://cholangiocarcinoma.org/icrn/.

14.   Privacy Management Framework. AICPA https://us.aicpa.org/interestareas/informationtechnology/privacy-management-framework.

15.   Invitae Corporation. Invitae’s real-world ciitizen data utilized in Praxis Precision Medicines’ PRAX-222 IND filing. PR Newswire https://www.prnewswire.com/news-releases/invitaes-real-world-ciitizen-data-utilized-in-praxis-precision-medicines-prax-222-ind-filing-301627677.html (2022).

16.   Government of Canada & Canada, S. Census profile, 2016 Census - Canada [Country] and Canada [Country]. http://www12.statcan.gc.ca/census-recensement/2016/dp-pd/prof/details/page.cfm?Lang=E&Geo1=PR&Code1=01&Geo2=PR&Code2=01&Data=Count&SearchText=canada&SearchType=Begins&SearchPR=01&B1=Language&TABID=1 (2017).

17.   Boulanger, A. M. The use of machine translation and AI in medical translation: Pros and cons. Med. Writ. 33, 62–65 (2024).

18.   Khan, S. A. et al. Guidelines for the diagnosis and treatment of cholangiocarcinoma: an update. Gut 61, 1657–1669 (2012).

19.   Pisa, F., Arias, A., Bratton, E., Salas, M. & Sultana, J. Real world data for rare diseases research: The beginner’s guide to registries. Expert Opin. Orphan Drugs 11, 9–15 (2023).

20.   Abou-Alfa, G. K. et al. Pemigatinib for previously treated, locally advanced or metastatic cholangiocarcinoma: a multicentre, open-label, phase 2 study. Lancet Oncol. 21, 671–684 (2020).

21.   CADTH. Pemigatinib (Pemazyre) CADTH Reimbursement Recommendation. https://www.cadth.ca/sites/default/files/DRR/2022/PC0252%20Pemazyre%20-%20CADTH%20Final%20Rec.pdf (2022).

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