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ICPR

Patients & caregivers can directly upload their clinical records into their secure digital profile

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Benefits for Patients & Caregivers

Benefits for Patients & Caregivers
  • Store your medical records in one, easily accessible location

  • Share your health records with one simple link

    • Get second opinions

    • Access a personalized clinical trial report

    • Collaborate with your medical team

    • Coordinate with your caregivers

Accelerate Research
  • Engage in research by allowing your records to be included in the ICPR

  • Advance understanding of cholangiocarcinoma

  • Accelerate discovery of new treatment options for patients

Patient registries are critical to developing new medical treatments. By sharing your or your loved one's de-identified medical data, you may be able to help researchers:
  • Develop new targeted therapies

  • Design better clinical trials

  • Understand how the disease changes over time

  • Use data (instead of actual patients) in clinical trials

The International Cholangiocarcinoma Patient Registry is powered by Invitae Ciitizen

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The Canadian Cholangiocarcinoma Collaborative (C3) is supported by a Canadian Cancer Society Breakthrough Team Grant in partnership with the Canadian Institutes of Health Research. The granting funds for C3 are managed by The Ottawa Hospital Research Institute, which serves as the lead institute for all collaborative operations.

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