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CADTH RDR RFP Supplemental Material

References

1.     Public Health Agency of Canada, Statistics Canada, Canadian Cancer Society & provincial/territorial cancer registries. Release notice - Canadian cancer statistics 2019. Health Promot. Chronic Dis. Prev. Can. 39, 255 (2019).

2.     Ramjeesingh, R. et al. A practical guide for the systemic treatment of biliary tract cancer in Canada. Curr. Oncol. 30, 7132–7150 (2023).

3.     Benson, A. B. et al. NCCN guidelines® insights: Biliary Tract Cancers, version 2.2023. J. Natl. Compr. Canc. Netw. 21, 694–704 (2023).

4.     Vogel, A. et al. Biliary tract cancer: ESMO Clinical Practice Guideline for diagnosis, treatment and follow-up. Ann. Oncol. 34, 127–140 (2023).

5.     Shroff RT, Ilyas SI, Javle MM, Valle JW, Azad NS, Borad MJ, Nottke A, Hu J, Stirnadel-Farrant HA, Valerio SJ, Maithel SK. Patient characteristics, treatment patterns, and outcomes in patients with cholangiocarcinoma in the United States. (04-2024).

6.     REDCap. https://www.project-redcap.org/.

7.     Marathon of Hope Cancer Centres Network. Home. Marathon of Hope Cancer Centres Network https://www.marathonofhopecancercentres.ca/.

8.     Precision oncology - better treatment decisions & outcomes. Exactis Innovation | Exactis | The Future of Clinical Cancer Research https://www.exactis.ca/participants/ (2023).

9.     International cholangiocarcinoma patient registry (ICPR). https://cholangiocarcinoma.org/international-cholangiocarcinoma-patient-registry-icpr/.

10.   Nottke, A. et al. Validation and clinical discovery demonstration of breast cancer data from a real-world data extraction platform. JAMIA Open 7, (2024).

11.   Canadian Cancer Society / Société canadienne du cancer. Building a national network for people with biliary tract cancers. Canadian Cancer Society https://cancer.ca/en/research/for-researchers/funding-results/breakthrough-team-grants/building-a-national-network-for-people-with-biliary-tract-cancers.

12.   The Alliance. https://www.globalccaalliance.com/the-alliance.

13.   Cholangiocarcinoma Foundation – To find a cure and improve the quality of life for those affected by cholangiocarcinoma (bile duct cancer). https://cholangiocarcinoma.org/icrn/.

14.   Privacy Management Framework. AICPA https://us.aicpa.org/interestareas/informationtechnology/privacy-management-framework.

15.   Invitae Corporation. Invitae’s real-world ciitizen data utilized in Praxis Precision Medicines’ PRAX-222 IND filing. PR Newswire https://www.prnewswire.com/news-releases/invitaes-real-world-ciitizen-data-utilized-in-praxis-precision-medicines-prax-222-ind-filing-301627677.html (2022).

16.   Government of Canada & Canada, S. Census profile, 2016 Census - Canada [Country] and Canada [Country]. http://www12.statcan.gc.ca/census-recensement/2016/dp-pd/prof/details/page.cfm?Lang=E&Geo1=PR&Code1=01&Geo2=PR&Code2=01&Data=Count&SearchText=canada&SearchType=Begins&SearchPR=01&B1=Language&TABID=1 (2017).

17.   Boulanger, A. M. The use of machine translation and AI in medical translation: Pros and cons. Med. Writ. 33, 62–65 (2024).

18.   Khan, S. A. et al. Guidelines for the diagnosis and treatment of cholangiocarcinoma: an update. Gut 61, 1657–1669 (2012).

19.   Pisa, F., Arias, A., Bratton, E., Salas, M. & Sultana, J. Real world data for rare diseases research: The beginner’s guide to registries. Expert Opin. Orphan Drugs 11, 9–15 (2023).

20.   Abou-Alfa, G. K. et al. Pemigatinib for previously treated, locally advanced or metastatic cholangiocarcinoma: a multicentre, open-label, phase 2 study. Lancet Oncol. 21, 671–684 (2020).

21.   CADTH. Pemigatinib (Pemazyre) CADTH Reimbursement Recommendation. https://www.cadth.ca/sites/default/files/DRR/2022/PC0252%20Pemazyre%20-%20CADTH%20Final%20Rec.pdf (2022).

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The Canadian Cholangiocarcinoma Collaborative (C3) is supported by a Canadian Cancer Society Breakthrough Team Grant in partnership with the Canadian Institutes of Health Research. The granting funds for C3 are managed by The Ottawa Hospital Research Institute, which serves as the lead institute for all collaborative operations.

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